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Bioethics Fundamentals

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Genetic Engineering

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The deliberate modification of the characteristics of an organism by manipulating its genetic material. Ethical considerations involve potential unforeseen consequences, access to the technology, and the morality of 'designing' living beings.

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Autonomy

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The principle that individuals have the right to make decisions about their own life and body without coercion. This includes informed consent in medical settings. Perspectives vary on to what extent individual autonomy should precede communal well-being.

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Epidemiological Ethics

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Ethical considerations related to the collection, analysis, interpretation, and dissemination of health-related data. Pertinent issues include privacy, informed consent, and the use of data for public health decisions.

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Disability Rights

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Concerns the rights of people with disabilities to receive equitable treatment and accommodations. Considerations include healthcare access, the right to live in the community, and the representation in medical decision-making.

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Organ Donation

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The process of giving an organ to someone who needs a transplant. Ethical issues can include consent, allocation of organs, and the possible exploitation of donors, particularly in the context of financial incentives.

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Utilitarianism

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An ethical theory that suggests the best action is the one that maximizes utility, often defined in terms of the well-being of sentient entities. In bioethics, this might support practices that benefit the majority but could conflict with the rights of individuals.

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Conscientious Objection in Healthcare

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When a healthcare provider refuses to provide certain treatments due to personal beliefs. This raises questions about the boundaries of professional obligations and patient rights, especially in issues like abortion and euthanasia.

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Assisted Reproductive Technologies (ART)

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Techniques used to help individuals achieve pregnancy, such as IVF. Ethical discussions focus on access to the technology, the status of embryos, and potential impacts on children, families, and society.

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Clinical Trials

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Research studies performed on people that are aimed at evaluating a medical, surgical, or behavioral intervention. Ethical considerations include informed consent, risks vs. benefits, and the inclusion of vulnerable populations.

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Animal Testing

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The use of non-human animals in experiments that seek to control the variables that affect the behavior or biological system under study. Ethical debates focus on animal rights, the necessity of non-human testing for advancement, and possible alternatives.

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Genetic Privacy

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The right to keep one's genetic information confidential. Ethical discussions focus on who has access to this information, potential discrimination based on genetics, and familial implications.

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Deontology

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Ethical theory according to which actions are judged to be morally right or wrong based on rules. It contrasts with utilitarianism by focusing on duties and rights instead of outcomes. Can be problematic when rules conflict with the greater good.

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End of Life Care

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Medical care given during the time leading up to death. Ethical considerations involve determining the appropriate level of treatment, respecting patient wishes (including potentially refusing treatment), and palliative care options.

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Non-Maleficence

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A principle that intends to prevent harm. In the medical context, it means healthcare providers should not harm patients. This raises discussion when considering treatments with potential side effects or in palliative care situations.

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Informed Consent

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The process by which a patient learns about and understands the purpose, benefits, and potential risks of a medical or surgical intervention, including the likelihood of success and alternatives, before agreeing to receive the treatment. Issues arise when considering the patient's comprehension and voluntariness.

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Resource Allocation

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The ethical distribution of resources in healthcare, which can include issues of scarcity, prioritization of care, and equitable access. Complexities arise in deciding who gets what and why, especially during crises like pandemics.

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Public Health Ethics

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The principles and values that guide actions in public health, balancing individual rights with the protection of community health. Dilemmas often occur in vaccination policies, quarantine during outbreaks, and access to healthcare services.

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Beneficence

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A bioethical principle that refers to the act of doing good and ensuring the well-being of others. In healthcare, it relates to the obligation of healthcare professionals to help patients. The debate often circles around the definition of what constitutes 'doing good' and how this may conflict with autonomy or other ethical principles.

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Stem Cell Research

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Research that uses stem cells to understand and potentially treat diseases. Ethical controversies arise especially around the use of embryonic stem cells, balancing the potential benefits against concerns of embryo rights and status.

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Reproductive Rights

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The rights of individuals to decide freely and responsibly on the number, spacing, and timing of their children. Controversies arise around issues such as abortion access, contraceptive use, and forced sterilization.

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Biobanking

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The process of collecting and storing biological samples, like blood or tissue, for research use. Ethics revolve around consent for sample use, privacy concerns, and potential commercialization.

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Justice

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The principle that concerns the fair distribution of benefits and burdens in society. In bioethics, it's related to fairness in medical resource allocation and access to care, affecting debates on healthcare systems and insurance coverage.

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Health Disparities

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Differences in health outcomes and healthcare access between different population groups, often influenced by social, economic, and environmental factors. The ethical issue focuses on how to achieve a more equitable healthcare system.

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Healthcare Rationing

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The allocation of healthcare resources in the face of limitations. Discussions often revolve around criteria for prioritizing patients, cost-effectiveness, and the impact of these decisions on patient care.

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Human Enhancement

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The use of technological means to improve human attributes and capacities beyond what is considered normal for humans. Ethical discussions include fairness, the nature of human limitations, and the potential of creating inequities.

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Privacy and Confidentiality in Healthcare

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The right of individuals to keep health information private and the obligation of healthcare professionals to protect patient information. Balancing this with public health concerns and research needs creates ethical tension.

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Euthanasia

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Refers to the practice of intentionally ending a life to relieve pain and suffering. Perspectives range from advocating for patient autonomy and relief of suffering, to ethical dilemmas on sanctity of life.

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Surrogacy

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The arrangement where a woman carries and delivers a child for another person or couple. There are debates on the ethics of commercial surrogacy, the rights of the surrogate, and the commodification of the body.

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Healthcare Rights

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Issues surrounding what healthcare services a person is entitled to and under what conditions. This includes debates on universal health coverage, access to care based on legal or socioeconomic status, and the prioritization of services.

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Neuroethics

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A field that studies the implications of neuroscience for human cognition, behavior, and identity. It includes ethical questions about brain privacy, cognitive enhancement, and the treatment of neurological disorders.

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